This guideline covers assessing and managing motor neurone disease (MND). It aims to improve care from the time of diagnosis, and covers information and support, organisation of care, managing symptoms and preparing for end of life care.

This guideline includes recommendations on:

recognition and referral; information and support at diagnosis; cognitive assessments; prognostic factors; organisation of care; planning for end of life; and managing symptoms.

This guideline can be used by:

Healthcare professionals and social care practitioners caring for and supporting adults with MND; Commissioners and providers of MND health and social care services; and Adults with MND, their families and carers